Leisa Prescott's 24-Year Journey with Hidradenitis Suppurativa
Leisa Prescott's life was significantly impacted by a mysterious skin condition that caused inflamed abscesses and nodules for 24 years. Doctors were initially unable to diagnose the cause, leading to frustration and a toll on her mental health.
Prescott underwent numerous surgeries to manage the condition, but the shame associated with it also affected her personal life. She felt compelled to make excuses to partners, claiming allergies to avoid revealing the true nature of her illness.
A chance encounter at a hospital in 2013 finally brought answers. An Austrian doctor recognized her symptoms and diagnosed her with hidradenitis suppurativa (HS), a rare inflammatory skin disease.
While Prescott received treatment at the hospital, the extensive damage caused by years of undiagnosed HS limited the effectiveness of the therapies.
Raising Awareness of Hidradenitis Suppurativa
HS is a poorly understood condition, affecting less than 1% of the population. Dermatologist Erin McMeniman believes the actual number of individuals with HS could be higher due to misdiagnosis.
McMeniman emphasizes the need for increased awareness among medical professionals, particularly junior doctors, emergency department staff, and general practitioners, as these are the first points of contact for patients.
Steph Friend, diagnosed with HS in 2021, also faced a lack of understanding from doctors. This experience motivated her to create Hidradenitis Suppurativa Australia, a non-profit organization providing a platform for discussion and support.
The organization aims to raise awareness and change the perception of HS within the community. They even illuminated Brisbane landmarks in purple during HS awareness week.
Hope for the Future
While there is currently no cure for HS, research trials exploring alternative treatment options are ongoing. Dr. McMeniman encourages patients to participate in these trials, offering hope for improved management of the condition.
Individuals suspecting they may have HS should seek assessment from their GP, who can then refer them to a dermatologist for further evaluation and treatment.