Leisa Prescott's struggle with Hidradenitis Suppurativa (HS) began when she developed inflamed abscesses and nodules on her skin, particularly in her groin area, over a span of 24 years. Despite seeking medical help, Leisa faced dismissive attitudes from numerous doctors who misinterpreted her symptoms as mere acne, leading to a toll on her mental health as she endured over 300 surgical procedures to manage the scarring and inflammation.
Feeling isolated and ashamed due to her condition, Leisa went through years without a partner, making excuses about her health to explain her struggles. Eventually, in 2013, a chance encounter at Brisbane's Princess Alexandra Hospital led to a crucial diagnosis of HS by an Austrian doctor during one of her appointments, providing Leisa with the clarity she had been seeking for so long. Despite trialling treatments at the hospital to manage HS, the impact of the condition over the years made the results mixed, highlighting the challenges faced by those with this inflammatory skin disease.
Hidradenitis Suppurativa (HS) is a condition where recurring lumps develop under the skin in areas prone to friction, affecting less than one percent of the population and being more prevalent in women, particularly those of color. In Australia, HS is under-researched, with limited expertise available, leading to delays in diagnosis and treatment for patients like Leisa. Dermatologist Erin McMeniman emphasizes the importance of educating healthcare professionals on recognizing HS symptoms early on, addressing the lack of awareness and training programs that currently exist.
Steph Friend, who was diagnosed with HS in 2021, faced similar challenges with dismissive doctors despite exhibiting symptoms since preschool. To combat the lack of awareness and support, she founded Hidradenitis Suppurativa Australia, a non-profit organization that aims to raise awareness about the illness. Though there is currently no cure for HS, ongoing research trials are exploring alternative treatment options to improve the quality of life for patients like Leisa and Steph. To support those who suspect they may have HS, Queensland Health urges individuals to seek assessment from their GP, who may then refer them to a dermatologist for further evaluation and management.